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'Italian Association of peripheral neuropathy (AINP) Support This important initiative: rights are not gifts for the sick

GIFTS FOR PATIENTS 'RIGHTS NOT RARE

you loved has adhered to the letter to the regions promoted by the Group GIFTS FOR PATIENTS' RIGHTS NOT RARE and many groups and associations of diseases rare.

The letter, available at: http://dirittinonregaliperimalatirari.blogspot.com/p/lettera-alle-regioni.html the purpose of seeking recognition el ' allocation of a Regional Code of Exemption for Rare Diseases not yet included in Annex 1 of the DM 279/01,
On proseguento throughout the country is the collection of applications to the letter, either singly or in groups and associations who wish to support this initiative. has To join log on to link
http://www.facebook.com/topic.php?uid=285019897530&topic=14687 ,
indicando , , ; oppure nome +cognome del segnalante + mail +nome patologia.
Le firme raccolte e le malattie segnalate ,verranno accluse alla lettera comune ,spedita simultaneamente alle Regioni e al Ministero della Salute, all'Istituto Superiore di Sanità, alla Consulta Nazionale Malattie Rare, ad UNIAMO FIMR