Through a circle of knowledge, we were able to publish the joint letter to regional authorities, to seek recognition for rare diseases not recognized.
http://www3.lastampa.it/torino/sezioni/cronaca/articolo/lstp/389932/ 
Unfortunately there are some inaccuracies, it is said that ' initiative starts from Torino, but in fact is part of a group transregionale.Inoltre there is some overlap with the central region. Patience: a bit 'of vision there is still delivered. As I said in a previous post, it would be useful to be able to publish many more articles.
I am sure that with a little 'effort, we groped to make it.
To Italy-Tarlov, Elsa Aimone
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