| OLTRE 6400 FIRME A SOSTEGNO DELLA CAMPAGNA PER LE MALATTIE RARE NON RICONOSCIUTE |
| 07 March 2011 | |
| La Lettera alle Regioni per chiedere l’inserimento nei propri Elenchi Regionali di tutte le Malattie Rare ancora non riconosciute a livello nazionale, promossa da molti gruppi-associazioni di malattie rare aderenti alla Campagna per le Malattie Rare non riconosciute "Rights not rare gifts for the sick," was sent on March 4 last year to regional governments and regional departments of Health and the Ministry of Health. In less than a month have been collected over 6400 signatures in support of this initiative for the recognition and award of a Regional Code of Exemption for Rare Diseases not yet included in Annex 1 of Decree 279/01. Anyone wishing to report a new disease, or simply wish to add your membership, please write to: dirittinonregaliperimalatirari@gmail.com to view. The Letter to the Regions to seek recognition and allocation of a Regional Code of Exemption for Rare Diseases not yet included in Annex 1 of Decree 279/01 is available by clicking on this link . |
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