---------- Messaggio inoltrato ----------
Da: Diritti non Regali per i Malati Rari
< dirittinonregaliperimalatirar
Date: March 4, 2011 21:25
Subject: Letter to the Regions to seek recognition and allocation of a Regional Code of Exemption for Rare Diseases not yet included in Annex 1 of the DM 279/01
A: urp@pec.regione.abruzzo.it , quintacommissione @ region.
Cc: segreteriafazio@sanita.it , a.grimaldi@sanita.it , dp.segreteria@sanita.it , segr.dipqual@sanita.it , malattierare@iss.it , domenica.taruscio@iss.it , presidenza@iss.it , me.congiu@sanita.it , info@
A: Regional Governments and Regional Councillor Health
PC: Ministry of Health, National Institute of Health, the National Rare Diseases; UNIAMO FIMR
Subject: Request for recognition and award of a Regional Code of Exemption for Rare Diseases not yet found in Annex 1 of Ministerial Decree 279/01
Please find enclosed:
"Letter to the Regions to seek recognition and allocation of a Regional Code Exemption for rare diseases are not yet included in Annex 1 of Decree 279/01 "
we will supplement this e-mail with the documents described above and list of signatures (about 6000) to support and join our initiative, by registered mail, A / R.
In waiting for your much appreciated feedback please accept my best regards.
Rights Not Gifts for Sick Rare
Campaign for rare diseases are not recognized
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